Back to the hospital I go...

Back to the hospital I go...

Good day to you all :)

Hope you are all happy and healthy.

I wish I could say that I was...
Sadly I haven't gotten any better since my infusion, if anything I have gotten worse. I have been experiencing a lot of abdominal pain and nausea so I have been cuddling a couple of hot water bottles to help make me feel better. Due to it being my assessment time at University I decided that I couldn't be dealing with a flare up and assessments so I got straight on to the hospital. I was very impressed to have an appointment with my consultant 5 days later at 9am so I'd be the first patient seen, bloody amazing for the NHS!

My consultant was very helpful and has finally come out with what I believe a practical resolution. After my initial consultation which consisted of prodding my tummy which was ouchy, chatting through all my symptoms and seeing my last MRI pictures (that was so cool seeing my insides! And my boyfriend saw them, not a lot of boyfriends can say they have seen their girlfriends internal organs literally!) I was sent to have an X-ray to check there was no blockage in my bowel. Luckily there was no blockage but the X-ray did show that part of my bowel was largely inflamed.

So what's the solution? I am now going to be having a simpler version of a colonoscopy done so instead of viewing my whole bowel they will just look at the inflamed area and will take several biopsies. I may also be sent for another MRI scan to have a look at everything. 

BUT

They are now thinking that surgery will be the next option. In a weird way this is something I have wanted for a while. There are two options for my surgery, I will either have the infected part of the bowel removed or if it is just scar tissue that is causing the issue then the scar tissue will be removed. Both these procedures would be done through key hole surgery which is good. A lot of people find that surgery is successful for Crohn's disease as they may not have a flare up or any signs of the disease for years but others may experience it again within months it just depends on each individual. But if it could potentially help and for a long time I'd like to go for it.

So what do I do to make myself feel better?

I dress for me!

I may paint my nails, put on my favourite lipstick or a favourite outfit...

Or I might just snuggle into my Unicorn onesie!

I dress to make me feel good and better!

Big love to you all

x

The Return of Miss Moanie Crohnie!

Guess who's back? Miss Moanie Crohnie's back!

Hello my lovelies!

 

I am so sorry it's been so long since I've blogged! I have been so very very busy with just life; Uni work, Miss Pinup UK, work etc etc 

But I finally have my iPad set up so I am blogging to you directly from my latest infliximab infusion. 

So let's have a catch up...

Infusion selfie!

 

 Christmas Day was wonderful.

 Boxing Day was spent on the farm with my boyfriend.

New Year was a glam night partying into the New Year

 

 I have been featured in Vintage Life magazine talking all about the Miss Pinup UK competition

I had the incredible opportunity to perform at Sadlers Wells

 

 

Photo shoot with the incredible Terry Mendoza at www.retrophotostudio.co.uk

 

My latest photo shoot with the fabulous Deadly is the Female!

Photography by Kevin Mitchell, Hair by Lolita Noir and Make-up by Jenn Chambers

That's what I have been up to but more importantly how's my Crohn's disease?

The infusions seem to have done their job and I have been really well, up until now. Over the past couple of weeks sadly its been flaring up a bit with bad abdominal pain, frequent visits to the bathroom, blood where there shouldn't be blood and some other pleasant symptoms. This has all been kicking off as its that time of year at uni, assessment time. Naturally I am stressed and that just can't be helped so sadly it's making my tummy unhappy which is just making everything more stressful. Luckily though the hospital have been a great help and booked me in to have my infusion early to boost me up before my main assessments in the next couple of weeks. So fingers cross this does the trick!

3pm: Well I am plugged in and going! My veins didn't really want to co-operate today. My right arm has always been stubborn with canulars and blood test but my left arm has been so over used it could do with a break! My last blood test my right arm gave blood (woohoo!) but today it doesn't want to know and when it's a canular being prodded into your arm it hurts a lot more. Luckily my left arm is being good and the canular is in but still with a bit of pain. It makes things really awkward having a canular in your arm, I'm having to type this one handed! When the saline is put through its a really strange feeling as its all chilly going through me. The stuff they also flush through, the anti-allergy medication, really stings as it goes through and I can strangely taste it but it also makes me rather sleepy and dopey. But once I am plugged into the drip everything is fine and dandy and now I only have to be plugged in for an hour and a half so that's good. 

All has gone well and hopefully this will get me through my exams and then it'll be time to chill over the Easter break.

Today's infusion.

I will try my hardest to keep up with blogging but for now stay happy and healthy :)

Mwah x