The Other Half of Miss Moanie Crohnie!

The Other Half Of Miss Moanie Crohnie!

 

Well as I blog to you lovely people I am in process of having a Sehcat scan, a scan I have never heard of before! I first had to swallow a tablet which contained radioactive substances. That's right, I'M RADIOACTIVE BABY! (slightly!) This substance should become attached to the wall of my bowel making it easier to see on the scan. After 3 hours I had the scan in which you lie down in a tiny tunnel, it's a like a mini version of an MRI but a hell of a lot less scary! The scan only takes 5 minutes so I am in and out and gone! I then have to wait a week to be re-scanned to see how much of the substance is left which determines something but I got quite confused by all the techniqual jargen, so we shall wait and see :)

 

This week I want to talk about the other half of Miss Moanie Crohnie-the wonderful man in my life.
(WARNING:SOPPY PARAGRAPH!)

 

“Nothing in this world compares to the comfort and security of having someone just to hold your hand.”  

 

The first thing I ever properly talked about face to face to this amazing guy was about my crohn's. Admitedly we were both a bit drunk walking back from a party but we just talked and he listened as I explained what it was I had and how it made me feel and what the future may hold with hospital appointments, new medications and possibly surgery. He put his arm around me and everything just seem to fall in to place.

 

Now we have been together nearly 2 1/2 years and he has stuck by me through absolutely everything. He's been at nearly every hospital appointment with me, sitting holding my hand in the waiting room reassuring me that everything will be okay, he's looked after me when I've been at my worst tending to my every need, he's offered to learn how to inject my medication when I felt like I couldn't do it. He even managed to stay calm when I walked into the waiting room looking for a nurse after my MRI scan wearing a hospital gown partly covered in blood and with my arm dripping blood after having my canular removed! He has just been the most supportive, the most understanding and the most loving person I could ever imagine.

 

Thank you Shannon, I couldn't get through this every day without you x

 

He has also introduced me to something I never thought I would enjoy and love...

FARMING AND TRACTORS!

 

 

Yes my other half is a proper Somerset boy! He work's on a farm and drives tractors! He work's on a farm with a heard of Jersey cows and they produce the yummyiest milk and cream, it's even sold in Harrods! He has introduced me into this world and made me a farm girl and I LOVE IT! I've helped out with this TB testing, calfing, sillage all sorts and it's amazing but bloody hard work!

But, the best thing, the greatest thing! He let me drive his tractor.

No one is ever allowed to drive his tractor.

BUT I DID!

:D

 

 

Till next time my lovelies,

I wish you all happiness and health.

Mwah x

 

University as a Crohnie

 

This weeks blog is all about how my crohn's has effected my University life.

 

 

A lot of people find it strange and weird that I decided to stay at home and commute every day to University and normally when I tell people they say "Oh that's nice for you then" in a aww she couldn't leave her home and family tone of voice. But actually the main reason behind this choice is because of my crohn's.

 

My crohn's at times can be incredibly embarrasing; my tummy gets so bloated from the inflammation that it looks like I'm pregnant and sometimes I have to occupy the bathroom more than I would like too! And the thought of having to deal with that at University in an environment where I would possibly have to share a bathroom with 6 others terrified me! Having to exaplain to people I'd never met before what's wrong with me and why I may need to use the bathroom immediately scared the shit out of me! Great way to make new friends! Whereas being at home I know I am in a supportive comfortable environment where I am surrounded by people who understand and can help with what I am going through. If I have to spend the day in bed in pain I know I will have peace and quiet and access to the bathroom asap! If I need special dietry requirments I haven't got to worry about have I got enough money to spend. It's relaxing knowing that if I feel shit I can just drive home and curl up in my bed.

 

Another reason for staying home is being close to my hospital. Knowing that I am only half an hour away from help instead of 3 is reassuring. Through out this year so far I have had some major up's and down's which have affected University a lot to the extent where I have had to miss day's and important rehearsals and I feel bad because I feel as though I am letting people down. So being able to get in touch and see my consultant and get treatment quickly is so beneficial and comforting. Whereas, if I had moved away this could of been a realy struggle and stress resulting in possibly a worse flare-up.

 

As much as I LOVE going out and hitting the town I just couldn't physically keep up! It would just end in disaster for me! And I know that I would be a push over and if people asked me to go out, I would. So I am actually trying to be sensible in order to look after myself.

 

I have been asked by many people as well "Do you not miss out on the student life?" Well simple answer yes I do. I am at times jealous of those who have moved out and get to be independant and be as crazy as they like but I'd rather be healthy than be living the student life whilst suffering on the inside.When I started Uni I didn't instantly make best friends with people who I see everyday and go out with all the time, I struggled and just had to go with it and at times I did doubt that Uni was for me because I felt like I stuck out because I was the girl that lived at home but now I have met some amazing lovely friends who are just fab and make Uni enjoyable!

 

Thank you for reading

Mwah

x   

 



The joy's of being an adult!

The Joy's Of Being An Adult!

 

 

This week I got the joy of being an official adult with Crohn's. I had my first adult colonoscopy. It sounds odd that there could be a difference between an adult and a child colonoscopy but trust me there is!!

 

First of all I will set things straight. Yes, a colonoscopy is where they put a camera up your bum. Lovely.
 

 

 When I had my first colonoscopy I was aged 16 and still a child therefore to perform the procedure they put me to sleep (Woohoo!!). I arrived at Bristol Children's Hospital at 7.30am for my procedure but because I was the oldest on the ward my procedure would be last so I wouldn't be going in until 3pm! Great! However, I was given my own dvd player so spent the day watching Garfield and Friends! I don't remember much about the procedure just the anesthetist trying to talk to me about what subjects I would be missing at school which I really didn't give a care about and the nurse was pestering me about trying to remember my dream when put to sleep! When I came out of the procedure I remember that I kept trying to sit up as I was coming out of the anestetic and the nurses kept having to make me lie back down. When I was fully awake I just felt woozy and sore, down there!

 

However, with an adult colonoscopy it's a completely different story! For starter's when I was taken onto the ward to get prepped I was youngest on the ward by around 40 years although all the other ladies were supper lovely :) I was taken into a theatre with my own team of doctor's and nurses who made me feel relaxed and in safe hands. I was given a sedative which as my doctor told me it would made me feel like I had a few glasses of wine (would rather of had the wine in the first place but hey ho!) The procedure then took place. I won't go into details but it was so strange. I led there watching my insides, that's just not normal. It was very uncomfortable but in a weird way watching my insides made me ignore the pain although all I wanted to do was wriggle around to get away from the pain. During the procedure I had biopsies taken which was OUCH! The doctor had a claw like instrument which he would open, clamp down on my bowel and then pull part of it away to take away to be analyised. OUCH!!

After finally being discharged I felt very slow, ditsy, sore and achy but my goodness was I glad it was over!! Next, I have to have a Sehcat scan?! Which I have never had before so should be interesting. All I know is that I will be radioactive! Then to follow that I will be back in the tunnel having an MRI scan listening away to my Mumford and Sons and Paloma Faith mix CD.

Prior to joyous colonoscopy and my scans galore I made a little trip to my favourite shop "Deadly is the Female" to treat myself; One sailor swing skirt and a black chiffon scarf.

http://www.deadlyisthefemale.com/clothing/bottoms/sally-sailor-skirt

Go check out this gorgeous shop (blog to follow soon). Ladies it can make you feel amazing as soon as you slip something on!

 

One of my fav Deadly dresses whilst modelling in the window!

 

Mwah x

 

Miss Moanie Crohnie Welcomes You!

Miss Moanie Crohnie Welcomes You!

 

Miss Moanie Crohnie aka Sarah

 

Welcome to the official Miss Moanie Crohnie blog! I wanted to create this blog in order to share my thoughts and experiences of suffering with the invisible disease that is Crohn's disease. It's taken me a long time to come to terms with my illness, to accept that it will be with me for a life time and as of yet there is not cure. So for now I can have a good rant and moan but also share some love via this blog. Therefore, I welcome you into my little world, a world where Crohn's disease does not control me.

(WARNING: This blog is completely honest! Crohn's is not nice! Apologies as well for any swearing etc but sometimes it's just needed!)

 

My name is Sarah Wingrove and I am 18 and currently studying dance and drama at University and this is my story. I was first diagnosed with Crohns disease in 2009 when I was 15 . I had been experiencing constant sickness feeling, fatigue and I had just had enough! After visiting my GP I was sent to see a paediatric doctor at Bath Royal United Hospital with the initial thought I was suffering with irritable bowel syndrome (IBS). I under went blood tests and X-rays and from this I was first told that it could be Crohns disease. I had absolutely no clue what so ever what the hell crohns disease was! All I knew is that it did not sound nice!

I was then transferred to Bristol Children's Hospital to seek a specialists opinion. I went on to have more tests; my first MRI scan (Which was terrifying!!), a nuclear scan where they took away my blood and then put it back in all radioactive, an endoscopy and colonoscopy (Thank goodness I was put to sleep!) and never ending amounts of blood tests. So many that when I have blood test nowadays I am told by the nurses my arms looks like that of a drug junkie!

So from all this I was finally diagnosed as having crohns disease. A disease I was told that would be with me for a life time with no cure in sight. Wow.

 

Crohn's disease I find hard to define because sometimes it's just embarrassing to do so! In my opinion it's where part's of my bowel become inflammed and then the lining becomes damaged as food tries to pass through. It's bloomin painful!! Ladies, imagine period pain...times 10! Sadly, no one knows what cause a flare up of crohn's it's just something that has to try and be controlled by medication, surgery etc.

 

After being diagnosed and being given my first set of tablets to try (Pentasa) I suffered a severe flare up. During this time I was sitting my final year of GCSE's and I think the stress just got to me of exams and being diagnosed that unfortuantely I flared up, big time! I was set on a course of a 6 week fluid diet which meant 6 weeks of no eating just drinking medicated milkshakes which can only be described as tasting fucking awful! I ended up spending 10 weeks on the medicated milkshakes and it was probably one of the toughest times of my life.

 

To date thankfully that has been my worst flare up. Today as I sit and type to you I am not in complete remission but I am not on a road to giving in! My medication today consists of 4 azaithioprine tablets daily, 2 mepredec tablets daily and a weekly injection of Humira. To me it doesn't sound like much I am just thankful that I am reasonably healthy so that I can live my life to the full.

 

So that's the start of my story about living with crohn's disease, we'll just have to wait and see what happens next...

P.S. I didn't mention that Crohn's disease also badly effects toiletting in ways I wish not to discuss but it is a part of crohn's disease so it is a part of me which need not be mentioned in this blog!