A New Battle Begins...

A New Battle Begins...

 

Hello to my gurt lush readers!

(I had a voice recording at my place of work this week in which I had to do a west country accent and I am still loving it!)

Hope that you are all healthy and happy.

 

This made me giggle and smile :)

 

This week's blog reveals the results from my tests and scans and what I will venture in the next chapter of my crohn's disease battle...

 

So my colonoscopy revealed good and bad results. The bad result showed that my crohn's has been active recently causing it to be very sore and scarred which is bad as it means that my current medication may no longer be having any positive effect on treating my crohn's. However, for me this is also a good result because the doctor's have always struggled to directly locate where my crohn's is most active and they have struggled to find evidence of it's activity so in a strange way it's also a good result. So an up and down result really but after what I had to experience with the colonoscopy, I am glad it's showed something of use!

 

The results from my Sehcat scan and MRI scan came back pretty normal which is a good thing as it means that my crohn's isn't currently flarring up but it's also very annoying as it doesn't help the doctor's in finding out what exactly is happening inside of me! I then had a long discussion with my consultant about how I do still get bad day's and that when they appear they are bad! I may have to miss work or Uni and be stuck in bed curled up or I have to take drastic actions like taking pain killers and immodium in order to just get through the day. We also talked about my Humira injections; how long I had been on them for, my dose changes and if I was still beneftitting from them. From this discussion we decided that the best option for me is to change my medication and stop my humira injections and start having infusions of a drug called Remicade.

 

 

I don't know a huge amount yet about the whole process of the infusion but I from responses from crohn's friends it should help out a lot! An infusion of Remicade will involve going to my hospital and having a drip put in for 3-4 hours so the drug can be infused into my body. After my first infusion I will have another one in 2 weeks time then I am not sure of the process whether I then wait another 2 weeks or 6 weeks as my doctor was really confused but basically eventually I will have an infusion every 8 weeks. The thought of having to sit for 3-4 hours on a drip does scare me a lot as normally canulars hurt like a bitch when you move! But I hope that each time I have an infusion I can take my laptop along and blog and take photo's you all as the process happens :)

 

This was all pretty scary but great to know that things are being done to try and help me and I can't thank the hospital, doctors and nurses enough :) 

I was lucky enough that straight after my appointment I headed off on holiday to Cornwall so here's a few of my favourite photo's... 

 

 

Have a wonderful week :)

 

Mwah x

 

P.S. Please do keep sending in questions and comments about crohn's disease, my blog or any of your experiences :)