Monday, 1 July 2013

The Invisible Disease!

The Invisible Disease!
 
Hello lovely people :)
Hope you are all well! Before I start this week's blog I would just like to say a little thank you to everyone who has read my blog posts so far. I really am overwhelmed by having nearly 500 views with only 4 blog's posted. So thank you all for support, interest and amazing comments, makes me feel good to know so many more people are becoming aware of crohn's disease so thank you :D
 
 
The latest news about my crohn's disease is that I have finally recieved my letter confirming that I will be having a small bowel MRI scan in a couple of week's time. This will be my third MRI scan so thankfully I've become quite use to it because trust me it can be VERY scary! But to anyone out there who is due to have an MRI scan my advise-take a music CD and make sure they play it for you! The MRI scanner is very loud so you are given headphones and you may not be told about it but you can take a CD so you can listen to music in the scanner and it really does make a difference as it's something that can relax you and take your mind away from what is happening. My personal choice of music: Mumford and Sons :D
 
This week's blog I'd like to talk about how crohn's is often referred to as the invisible disease.
Because of crohn's being an internal illness it's always going to be hard to make people aware of what it is you have and when you are suffering from it. A lot of people never actually knew that I had crohn's disease and had done since I was diagnosed when I was 15. For me personally if I'm suffering I don't wanna be moaning and groaning away about how bad I'm feeling and how ill I am, because I'd rather just get on with things and live my life. However, sometimes crohn's disease makes that very hard to do! That's why I believe that if you are able to make more people aware that you do have an illness and what it can be like during the bad times then that invisible disease can become visible. 
With crohn's disease, it's making people aware the extent of the pain you may be suffering with (I'm always carrying around a hot water bottle on my tummy when my crohn's is bad!), explaining that you may have to use the toilet more frequently (A lovely conversation, but necessary!), that you may be tired and a bit slow and that's not because you had a late night or hit the town and didn't get in till 4am but because your actually really down in the dumps and just ask kindly for support during a bad time.  
 
Awareness is so key for Crohn's disease!
 
No crohn's disease sufferer ever want's to be told:
"But you don't look ill"
"It can't be that painful!"
"You're so lucky you get to stay home and in bed all day"
 
 
The more we can educate people about what crohn's disease is and how it can effect people and how it can be treated the better it will be for crohn's disease sufferers :)
 
Next week I will be blogging about how these 4 little words can make me feel amazing on the outside when I'm not feeling so great on the inside!
Deadly.Is.The.Female.
 
Mwah x
 
 


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