I promise to tell the whole truth and nothing but the truth about my bowel!

I promise to tell the whole truth and nothing but the truth about my bowel!

 

Hello my dears :)

 

Hope you have been snuggled up inside on this horrible wet Sunday!

 

This week I had my third infusion and all seemed to go well. Except my blood pressure dropped again and then slowly came back to normal, it's something they are going to keep a close eye on. However, I remembered that AGES ago I had asked for you to send me any questions you had about Crohn's disease or living with the illness. I was rubbish and hadn't answered them!

But I have re-visited them and here goes, this will be honest...

 

This week's infusion entertainment was Glamour Magazine

 

What actually causes Crohn's Disease?

Nobody has a clue to be honest! There are many theories such as you can contract the illness through your genes, that it's an abnormality of the immune system, environmental and lifestyle factors can trigger it. Sadly, nobody has been able to pin point it which is a real pain, if we knew the cause we could find the treatment and stop other people from suffering from this horrible disease.

 

How do you find out if you have Crohn's Disease?

It's a loooooong process. For me personally I first visited my GP because I was bored of feeling sick and really tired all the time. I had a few blood tests and after some abnormalities showed up in my results they thought I may have Irritable Bowel Syndrome so I was then sent on to see the paedetrician (I was 15 at the time) at the local hospital. I then had further blood tests, stool samples, x-rays and an ultrasound. From all these tests the results didn't look good but being a child they don't really explain it very well to you! So I was then sent to see a specialist at the Bristol Children's Hospital where after many more blood tests, a endoscopy and colonoscopy I was diagnosed with having Crohn's disease. It's not the easiest of things to pick up on that's why you have to go through so many tests to finally find an answer.

 

Do you have to be really aware of what you eat? 

Everyone is different and have trigger foods which will result in a flare up. Some people have discovered that they are lactose intolerance or that they have a wheat allergy because it is what triggers off a flare up. Not being able to eat spicey food is really common within Crohn's disease as we all know what can happen the next morning if we have a spicey curry! (Eww!) I also find that really fatty foods will upset my crohn's, I use to have a chinese takeaway then feel hiddeous afterwards so I have had to stop that now. It's not difficult to stop having certain foods because we know what the result will be if we eat them so it's a real turn off!

 

Can you get any other illnesses or issues if you have Crohn's Disease?

Sadly yes. As much as Crohnie's don't like to admit it and talk about there are other illnesses and issues that can arise because of Crohn's Disease. This is quite commonly due to our crappy immune systems. We quite often have vitamin deficiencies for example when I was first diagnosed with Crohn's they found that my iron levels were very low so I was put straight on to daily iron tablets. We also easily suffer from infections and illnesses like flu and it can take a longer to get over them. Other common problems associate with Crohn's Disease are arthritis, skin problems, inflammation in the eyes or mouth, kidney stones, gallstones, or other diseases of the liver and biliary system. Some of these problems can be resolved during treatment for Crohn's disease but others have to be treated seperately. It's is something that Crohnies just have to accept.

I hope I have answere some of your questions and given you a good insight into Crohn's Disease. If you have any more questions, feelings or views on Crohn's disease please just facebook, tweet or email me :)

For now I await my next appointment with my consultant to decide on whether I should continue with my infusions.

It's a life long battle.

 

Until next time my lovelies :)

Mwah x

 

Miss Moanie Crohnie is Miss Pinup UK 2013!

Miss Moanie Crohnie is

Miss Pinup UK 2013!

 

Hello you lovely ones!

 

Soo sorry it's been so long but it's been an incredible few weeks!
I am officially Miss Pinup UK!

 

Ahhhhh how exciting! I am still in shock but still absolutely over the moon!

 

Miss Pinup UK 2013 Finals!

 

I entered the competition under my pinup name Miss Scarlett Luxe-Scarlett for my red hair and luxe as it's French for luxury! The Miss Pinup UK competition was held at the international London Tattoo convention in which there were 10 finalists. The Friday was the quarter finals, Saturday semi finals and Sunday the finals. The competition consisted of first having a question and answer session with the judges, we then had to perform a special talent in which I performed a couple of high energy dance routines one being a nautical themed jazz number and the other a seductive pointe work piece. We were finally brought onto the stage for a parade in which the results were given to us. It was an incredible and inspirational experience being able to work alongside many beautiful and very talented performers. This was the first year the competition has been held so I am absolutely over the moon to have won and I am still in shock. I am really chuffed to have won as well as I am a girl who has boobs, hips and a bum and I am a happy size 12 so I don't have the conventional model look but it's done me well in the world of Pinup. I am looking forward to the year ahead and I am excited for what it will bring me!

 

It has been an even greater achievement for myself suffering with Crohn's disease. I have recently had a rough time with my illness but I now having infliximab infused into me every 4 weeks seems to finally be kicking in and working. So to win this competition has given me a real boost in my confidence knowing that even though I will always have this illness I really can say sod it and achieve anything I put my mind too.

 

Miss Pinup UK, Miss Pinup International and all the finalists

 

I want to say thank you to EVERYONE who voted. You are super amazing and I appreciate all your support so much! If you would like to follow my adventures as Miss Pinup UK follow "Miss Scarlett Luxe" on facebook.

 

https://www.facebook.com/missscarlettluxe

 

Miss Scarlett Luxe

 

Next week will be my third infusion before my consultation to decide whether to continue with the infusions and how often or whether we should try something different. But I am feeling positive and I think the infusions may be the way forward :)

 

I promise to keep up with the blogging but thank you again for all your support.

 

Mwah xxx

 

 

 

 

 

Pain in the Arm!

Pain in the Arm!

 

Hello my lovelies :)

Hope you are all spiffing!

 

This week has been a mixed week, some major highs but also some lows including my second infusion!

 

Let's get the bad stuff out the way!

So this week I went for my second infusion and it all started off on a positive note as they were able to fit me in earlier so no hour wait this time! They took my first obs and all was well. I think I spoke to soon about everything going well! I then had a 45 minute wait of nothing as the pharamacy hadn't delivered my medication and they couldn't find my prescription. Eventually the nurse went on a hunt and all was sorted. When it came to putting the canular in I was really surprised to see where she put it in. Instead of putting it in the crease of my arm basically where my elbow is she put it underneath in my arm which was a right pain in the ass as I couldn't then bend my arm, this was a major issue when it came to needing to use the bathroom! It was also ridiculously painful! The nurse had to inject the anti-allergy drug and it has to be done slowly, I have never felt such a strange but horrible pain I really wanted to punch the nurse to stop!

 

Strange and painful place to put a canular!

 

I was eventually hooked up and all started off well until the nurses had a bit of a panic as my blood pressure suddenly dropped really low and I became very sleepy but they were able to get everything back to normal. So all went well and dripped on into me except I did have the occassional pain in my arm from the canular. Once all was done I felt very drowsy and doppy and I felt as though my brain couldn't really operate! I also felt as though I had a cold coming on, my nose was slightly blocked and my throat sore.

 

And as I type away to you I am tucked up in bed with a cold and a husky voice!

 

On a major positive note I have exciting news!!! :D

 

I have made it through to the Miss Pinup UK finals in London next weekend! 

Ahhhhhh :D

 

I am so unbelievably happy and excited!  

 

 

I will travel up to London Friday morning to compete in the quarter finals and I hope to go through to Saturday's semi finals and then Sunday's final! I am in this to win this! We have to first come on stage in our first outfit to talk to the judges, we then perform our special talent (I have a couple of dance routines I will be revealing!) and we finally come on in our second outfit for more questions before the results are given.

 

But...

I NEED YOUR HELP PLEASE!

 

Please vote Miss Scarlett Luxe!

 

In order to help me to get through the competition I need your amazing support so if you could kindly go to this page: http://pinupuk.com/girls/ and vote for me under my pinup name Miss Scarlett Luxe. You would be amazing and I would love you forever!

 

I'll let you all know how I get on-EEE I CAN'T WAIT!

 

Ta ta for now :)

Mwah x

 

 



A day on a drip

A day on a drip!

 

Here it is my first live blog at 2.32pm! Sadly due to lack of internet connection I can’t actually post this out straight away but I am typing away as I am plugged into the Remicade drip. It’s actually surprisingly easy to type with this thing in my arm.

Remicade Leaflet

 

I am currently about half way through the process and feeling pretty good just feeling a bit drossy. But weirdly I am excited also because I know finally that something is being done and fingers crossed I will be feeling better and get back to my normal self, YAY J

My appointment today should have been at 11am but due to a busy morning I had to wait an hour before anything could happen, so off Shannon and I popped for a cuppa tea. I returned at 12pm and after a little bit more waiting I was finally taken through to get settled in. I have a massive very comfy green chair to sit in, reclines and everything. The nurses here are all super lovely and are making me feel very comfortable and happy which is good because I am a bit scared because you never know what may happen. I first had my blood pressure, heart rate and temperature checked and thank goodness all is good. Once the drip began I then had these tests done again and again every half an hour to keep check. After a few yes no questions about how I’m feeling such as did I have a sore throat or a cough etc I was ready to rock and roll. The canular was put into my arm and normally I find them really painful but this one was actually alright. I had bloods taken to be sent off and checked and as per usual I bled everywhere again. I also had what seemed like lots of saline flushed through to keep everything clean. It was weird because I could feel it going through my arm, made it all cold. I was finally ready to hook up to the drip.

Canular in my arm

 

So I am now hooked up and going and all seems to be going well. YAY! I have about another hour on the drip to go and then I will have to wait 2 hours to check that I am okay and not having a bad reaction to the medication at all.

Hooked up to the drip

For now I will leave it there and then once I am all done, home and settled I will finish off and add photo’s too J
Speak soon!
x

HELLO!

So I am finally back home and snuggled up in bed as I am knackered! It's really weird I feel as though I have done nothing today and yet I am so tired. I have already have a half hour nap and an hour nap and can't wait for bed time! So I will keep this part short.

Once my drip had emptied (and the machine had beeped a lot at me!) they then washed through the drip with saline to keep it all clean. Whilst I was waiting for this to drain through I had a lovely chat to the gentleman next to me and his wife. He was in for a Endoscopy and after explaining what I was in for he couldn't get over how young I was and what I was having to go through. It was really touching as this complete stranger was being so caring and campassionate.

The drip nearly empty

After the drip had finished and the canular removed from my arm I had to sit about for a bit just to check I wasn't going to have a bad reaction or anything. I had a mini worry that they would keep me in longer as I had a bit of a temperature but I managed to persuade the nurses that all I wanted to do was go home.

It's been a really positive day and hopefully life will start to get back in order but for now I am glad to be home and snuggled in bed!

Till next time lovelies :)
Mwah
x

Up and Down and Round and Round!

Up and Down and Round and Round!

 

Hello All :)

 

Really sorry for a very late blog! It's been an extremly busy few week's which means my crohn's has been a bit up and down!

 

I have been doing all sorts from going to watch Paloma Faith, celebrating my amazing supportive boyfriend's 21st birthday to taking part in a increidble production of Singing in the Rain. During these busy spells I have to be super careful and conscious of things such as making sure I am eating properly and resting enough because it's so easy just to forget about looking after me (which sounds a bit selfish but it's so crucial!) and then I end up being really unwell, holting everything I do and love!

Something I have noticed in particular during this busy time is how my stomach size and appearance changes, it can be quite drastic. I can't explain very well why my stomach bloats up but I'll try! When my crohn's is active my stomach and bowel become over sensitive therefore as it tries to continue it's normal process it can't so bloats up almost to protect everything on the inside. It's quite common for the bloating to occur around afternoon/evening time which can be a right pain in the ass if you want to go out for the evening because your just all puffed up! This bloating can be very painful and can sometimes be so bad that I actually look pregnant! Which for being a 19 year old is bloody horrible!

This has taken a LOT of guts (no pun intended!) to post but the left image is my normal stomach and the right is how badly bloated my stomach can become. It look's like it could be a pregnant tummy!

I have particulary found that when I am stressed my crohn's is triggered off and I become badly bloated. For example I have been rehearsing daily for a production of Singing in the Rain whilst also planning and sorting out my boyfriends 21st surprise birthday party. I found that on the day of my boyfriend's birthday I worked myself up and stressed myself out more than I probably should of, worrying about hundreds of things when I should of relaxed and had a more positive mind. Then when it came to the party once I began to relax my stomach then started to play up. It got so bad when we went out to party the night away that my stomach bloated up to look pregnant and was so painful and uncomfortable that sadly I had to go home. It can be really disheartening as it seems like something that is so silly but it can ruin my every day plans not just for me but for other people, I feel as though I can't enjoy a normal life because there is always the risk that my crohn's will show it's ugly head. Also, as a young women it can really upset me as it can so drastically change my appearance sometimes so much that my clothes don't fit and I can't go out because I feel disgusting and that I just look horrible. On a more positive note I am learning methods that have helped the bloating to become less painful and less prominant such as breathing exercises to help calm myself and having soft foods such as soups and yoghurts so hopefully this will help in the future.

To end on a happy note here as some photo's of the exciting thing's I have been doing :)

My Birthday celebrations from my wonderful boyfriend :)

 

 Paloma Faith gig

 

My boyfriend's 21st birthday cake!

Singing in the Rain!

I have been given my date for my first infusion in a couple of weeks time so I shall be writing a live blog to let you all know how it goes.

Till next time my lovelies :)
Mwah x

A New Battle Begins...

A New Battle Begins...

 

Hello to my gurt lush readers!

(I had a voice recording at my place of work this week in which I had to do a west country accent and I am still loving it!)

Hope that you are all healthy and happy.

 

This made me giggle and smile :)

 

This week's blog reveals the results from my tests and scans and what I will venture in the next chapter of my crohn's disease battle...

 

So my colonoscopy revealed good and bad results. The bad result showed that my crohn's has been active recently causing it to be very sore and scarred which is bad as it means that my current medication may no longer be having any positive effect on treating my crohn's. However, for me this is also a good result because the doctor's have always struggled to directly locate where my crohn's is most active and they have struggled to find evidence of it's activity so in a strange way it's also a good result. So an up and down result really but after what I had to experience with the colonoscopy, I am glad it's showed something of use!

 

The results from my Sehcat scan and MRI scan came back pretty normal which is a good thing as it means that my crohn's isn't currently flarring up but it's also very annoying as it doesn't help the doctor's in finding out what exactly is happening inside of me! I then had a long discussion with my consultant about how I do still get bad day's and that when they appear they are bad! I may have to miss work or Uni and be stuck in bed curled up or I have to take drastic actions like taking pain killers and immodium in order to just get through the day. We also talked about my Humira injections; how long I had been on them for, my dose changes and if I was still beneftitting from them. From this discussion we decided that the best option for me is to change my medication and stop my humira injections and start having infusions of a drug called Remicade.

 

 

I don't know a huge amount yet about the whole process of the infusion but I from responses from crohn's friends it should help out a lot! An infusion of Remicade will involve going to my hospital and having a drip put in for 3-4 hours so the drug can be infused into my body. After my first infusion I will have another one in 2 weeks time then I am not sure of the process whether I then wait another 2 weeks or 6 weeks as my doctor was really confused but basically eventually I will have an infusion every 8 weeks. The thought of having to sit for 3-4 hours on a drip does scare me a lot as normally canulars hurt like a bitch when you move! But I hope that each time I have an infusion I can take my laptop along and blog and take photo's you all as the process happens :)

 

This was all pretty scary but great to know that things are being done to try and help me and I can't thank the hospital, doctors and nurses enough :) 

I was lucky enough that straight after my appointment I headed off on holiday to Cornwall so here's a few of my favourite photo's... 

 

 

Have a wonderful week :)

 

Mwah x

 

P.S. Please do keep sending in questions and comments about crohn's disease, my blog or any of your experiences :)

Miss Moanie Crohnie Needs You!

Miss Moanie Crohnie Needs You!

 

Hello to all my lovely readers :)

 

 

 

I would like to start this weeks blog by saying shit and wow.

This luckily has nothing to do with my crohn's but my response to how many views I currently have of my blog! I am 7 views away from having 1,000 views!!! Ahhh! I really can't believe it! THANK YOU SO MUCH to all of you out there who have taken time to read my little blog about crohn's disease, it's really starting to raise an awareness and makes me so ridiculously happy :D So thank you x

 

Onto this week's blog :)

This week has been a real great but busy week! So sadly I haven't got much time to write a proper blog so instead I am asking you for your help!!

 

 

In 2 week's time I'd really like to do a question and answer style blog and that's where you my wonderful readers come in! If you could kindly send in questions that I can then answer on my blog. It can be about anything to do with my crohn's disease for example does it affect my work life, how do my family cope, what other medical options are available? It can be anything, weird and wonderful are welcome. If you do not wish to ask a question but instead just make a comment or share a story those are more than welcome too.

Be creative :)

Please send them to me via my facebook or twitter account :)

 

I'd really appreciate any input and look forward to reading your responses!

 

Wish me luck for my hospital consultation next tuesday, finally get all my results from my tests and scans and hopefully a new solution for remission can be created. Will keep you informed of the outcome in next week's blog!

 

Have a fab week :)

Mwah x



So I take 4 tablets for this, 2 tablets for this, an injection for this...

So I take 4 tablets for this, 2 tablets for this, an injection for this...

 

Hello Ladies and Gents :)

After a rough week with my MRI scan this week has been a jolly good one!

So this week I thought I'd talk about how Crohn's can be medically treated to make life just that little bit better.

 

 

 

When you are first diagnosed with crohn's disease medication is very much trial and error to find what works best for you to keep you in remission and help with your symptoms. I first started off on a drug called 'Pentasa'. This is mainly an anti-inflammatory drug. However, after several increases in my dosage I found that 'Pentasa' no longer had any effect upon my crohn's. From there I went on to a drug called 'Azathioprine'. I have been on this drug in tablet form for around 3 years and this has had a very positive effect on my crohns (until now :P). I also take a drug called 'Mepradec' in order to control my stomach acid. My main medication currently is my 'Humira' injections.

 

 

I started the Humira injections just under 2 years ago. After a bad flare up my doctor suggested that I start on this drug to try and prevent any further flare ups. The injections are very similar to an epipen. I had a session with a nurse in which I was trained how to inject myself. Within this session I had 4 injections, 2 done by the nurse and 2 done by myself. It's really scary to begin with and you really have to learn how to trust yourself but it wasn't as bad as I thought it would be once I had learnt exactly how to inject myself. I personally inject my stomach around the belly button as I find this less painful but you can also inject in your thigh. The worst thing about it is obviously when the needle goes in as it is a stinging pain but it soon goes away and it's worth putting up with the pain if it benefits my health. I began my course by injecting once every 2 weeks but if I experienced symptoms of a flare up I would have 2 injections during my 2 week course.

 

My current medication is that I have 4 'Azathioprine' tablets, 2 'Mepradec' tablets and a weekly 'Humira' injection :)

 

So this week I have had a great week of getting out and about and forgetting all about my Crohn's disease! I had an incredible day at Splashdown (an awesome water park!!) with 5 amazing guys! We also dined at my favourite restaurant 'Frankie and Benny's' where I had a few cheeky cocktails and we then had a lush evening down on the beach.

 

Frankie&Benny's! 

P.S. I Love You cocktail-which I did!

My gorgeous boyfriend having an evening paddle!

 The beautiful beach!

 

Hope you all have a fantastic week :)

Mwah

x

 

 

Beautiful Day for an MRI Scan

Beautiful Day for an MRI Scan

 

Hello to my lovely readers :)

Well this sunshine is lasting longer than we all expected-HOORAY!

Hope your all making the most of having a proper summer!

 

My dog Rex getting his shades out ready for the summer sun!

 

This week's blog is all about my adventure to go and have an MRI scan but it's also the first blog that as I am writing I am suffering because of my crohn's.

 

My MRI scan is the last of all my recent scans to see whether over the past couple of years my crohn's has become worse or if it has stayed the same. I have had MRI scans previously so I knew what to expect but this time I had to some prep similar to that of a colonoscopy...

 

A couple of day's before my scan I had to eat light meals consisting of food's such as egg's, white bread, rice and cheese (basically beige coloured food). The night before my MRI scan after 10pm I could not eat any food until after my MRI scan the next day, I could only drink clear liquids but I also had to take a tablet called Dulcolax, that's right a laxative!

I won't go into details about this experience but the day of my MRI scan I felt very rough, almost like having a hangover you just can't shift!

 

The morning of my MRI scan I was confined to being at home near the bathroom but also to my bed as I felt so tired and rough I just kept collapsing into a heap on my bed to rest. After 12pm I wasn't allowed any more clear liquids which in this hot weather was not nice! My appointment was set for 3.05pm however I had to be at the hospital 45 minutes early for yet more prep. This prep involved drinking a large jug full of solution which helps to make my insides clearer on the MRI pictures. I was more than happy to drink this solution after not drinking for nearly 3 hours and it was soon gone to the surprise of the nurse!

 

So I was finally taken into the MRI scanner suite...

 

 MRI scanner

 

After removing my shoes and glasses I was asked to lie down on the bed whilst the nurses put a canular into my arm so that a bowel relaxing drug and a dye could get injected into me whilst I was in the scanner. I always find canulars to be particularly uncomfortable but you just got to put up with it for a short amount of time. I was then asked to gently turn over to lie on my stomach with both my arms abover my head (almost like a superman pose!) The nurses then placed panels across my back and strapped me in to make sure I stayed as still as possible whilst in the scanner in order to achieve a clear picture. After putting headphones on so I could listen to my choice of music (Mumford and Sons of course!) and so that I could hear from the team what was going on and any instructions. I was also given a buzzer in one of my hands in case I need to get out of the machine for whatever reason. Once I was all set to go I was moved into the scanner.

 

I will admit that the scanner is bloody loud and it does ring in your ear! And it is scary! The actual sound of the scanner is like lots of different buzzing alarms at different paces and pitches. But through just closing your and listening to your own music and having to focus on instructions about breathing your mind doesn't have time to be afraid. The actual scan is over in no time at all and I was bought back out, had my canular removed (which didn't bleed everywhere this time!) and I was soon free to go.

 

The MRI scan all went well but due to the laxative I am still suffering and it has upset my crohn's making it rather painful and uncomfortable and I am still visiting the bathroom often but hopefully after a good night sleep I'll be as right as rain :)

 

This made me giggle!

 

Thank you for reading and have a wonderful rest of the week :)

Mwah x

 

 

 



Is that MY body?!

Is that MY body?!

 

Hello my loverlies :)

Hope you are all enjoying this gorgeous sunshine! It's lush to finally be having a proper summer. So crack out the shorts, the bbq's and the cider and enjoy this week's blog out in the sunshine!

 

Sat in my garden enjoying the sunshine trying to tan my pale self.

 

This week's blog is all about body issues both high and low when it comes to Crohn's disease.

 

Keeping a check on your weight is always key for a crohn's sufferer. During a bad flare up our weight can plummit but also during remission our weight can increase. Personally I have experienced my weight plummiting during a bad flare up and it's scary stuff how quickly it happens.

 

As I have talked about in previous blogs my worst flare up was during my GCSE's and I was set on a course of a 6 week medicated milkshake diet of a medication called Modulin. (It's fucking disgusting and use to make me heave!) This 6 week course ended up being 10 weeks and during this time I dropped nearly 2 dress sizes. Now a lot of people would think hey that's great a quick way to lose weight but actually it was not a very nice way of going about it. My mum in particular worried about me so much during this time because I just seemed to be losing more and more weight. It also resulted in me having to buy a new prom dress 4 day's before my prom because I'd lost so much weight that my original gorgeous dress just fell down.

 

 

New black prom dress for a new body with my wonderful friends

 

But weight can go the other way with crohn's disease and increase. When I came off my medicated milkshake diet I had to be so careful not to over indulge and not all of a sudden put the weight back on and possibly make myself ill again. Also, as many crohnies will have experienced a form of steriods is commonly prescribed to help control a flare up. However, a very common side effect is weight gain. During my course of steriods I did put on a small amount of weight (I was a lucky one!) but sadly the steriods didn't work to control my flare up. But there are many crohnies out there who have experienced the horrible side effects of steriods and how much it can damage your confidence.

 

As a crohnie our body shapes change so often and our confidence can be damaged. Luckily today I am in remission and my weight is at a good place and I try to keep up with eating good food, drinking lots of water and keeping fit through the gym and dance classes. However, there is one place which always makes me feel great about my body and confident with how I look...

 

Deadly is the Female, a girl's dream come true!

 

Deadly is the Female is a beautiful shop in the town of Frome which sells everything a girl could ask for; stunning dresses, pretty shoes, gorgeous handbags, the best swimsuits and so much more! It celebrates the female figure and offers clothing that actually fit the female shape, accentuating all the good parts (your boobs and bum will never of looked better!) but also hides away all those parts we do not discuss! I have never felt so confident and happy in my own skin and with my body shape than when I'm wearing something from Deadly is the Female.

I have also been lucky enough to of modelled for the website for this gorgeous shop and this has been a MASSIVE confidence boost. Through out my school life I always hated the fact that I had curves and wasn't a slim pretty girl and I would never of thought I could be a model but thanks to Deadly is the Female I now adore what my mumma gave me! Thanks to Deadly is the Female I now have to confidence to love my curves and make the most of them :)

 

Till next week when I will be able to tell you all about my MRI scan adventures.

Mwah x

 



The Invisible Disease!

The Invisible Disease!

 

Hello lovely people :)

Hope you are all well! Before I start this week's blog I would just like to say a little thank you to everyone who has read my blog posts so far. I really am overwhelmed by having nearly 500 views with only 4 blog's posted. So thank you all for support, interest and amazing comments, makes me feel good to know so many more people are becoming aware of crohn's disease so thank you :D

 

 

The latest news about my crohn's disease is that I have finally recieved my letter confirming that I will be having a small bowel MRI scan in a couple of week's time. This will be my third MRI scan so thankfully I've become quite use to it because trust me it can be VERY scary! But to anyone out there who is due to have an MRI scan my advise-take a music CD and make sure they play it for you! The MRI scanner is very loud so you are given headphones and you may not be told about it but you can take a CD so you can listen to music in the scanner and it really does make a difference as it's something that can relax you and take your mind away from what is happening. My personal choice of music: Mumford and Sons :D

 

This week's blog I'd like to talk about how crohn's is often referred to as the invisible disease.

Because of crohn's being an internal illness it's always going to be hard to make people aware of what it is you have and when you are suffering from it. A lot of people never actually knew that I had crohn's disease and had done since I was diagnosed when I was 15. For me personally if I'm suffering I don't wanna be moaning and groaning away about how bad I'm feeling and how ill I am, because I'd rather just get on with things and live my life. However, sometimes crohn's disease makes that very hard to do! That's why I believe that if you are able to make more people aware that you do have an illness and what it can be like during the bad times then that invisible disease can become visible. 

With crohn's disease, it's making people aware the extent of the pain you may be suffering with (I'm always carrying around a hot water bottle on my tummy when my crohn's is bad!), explaining that you may have to use the toilet more frequently (A lovely conversation, but necessary!), that you may be tired and a bit slow and that's not because you had a late night or hit the town and didn't get in till 4am but because your actually really down in the dumps and just ask kindly for support during a bad time.  

 

Awareness is so key for Crohn's disease!

 

No crohn's disease sufferer ever want's to be told:

"But you don't look ill"

"It can't be that painful!"

"You're so lucky you get to stay home and in bed all day"

 

 

The more we can educate people about what crohn's disease is and how it can effect people and how it can be treated the better it will be for crohn's disease sufferers :)

 

Next week I will be blogging about how these 4 little words can make me feel amazing on the outside when I'm not feeling so great on the inside!

Deadly.Is.The.Female.

 

Mwah x

 

 



The Other Half of Miss Moanie Crohnie!

The Other Half Of Miss Moanie Crohnie!

 

Well as I blog to you lovely people I am in process of having a Sehcat scan, a scan I have never heard of before! I first had to swallow a tablet which contained radioactive substances. That's right, I'M RADIOACTIVE BABY! (slightly!) This substance should become attached to the wall of my bowel making it easier to see on the scan. After 3 hours I had the scan in which you lie down in a tiny tunnel, it's a like a mini version of an MRI but a hell of a lot less scary! The scan only takes 5 minutes so I am in and out and gone! I then have to wait a week to be re-scanned to see how much of the substance is left which determines something but I got quite confused by all the techniqual jargen, so we shall wait and see :)

 

This week I want to talk about the other half of Miss Moanie Crohnie-the wonderful man in my life.
(WARNING:SOPPY PARAGRAPH!)

 

“Nothing in this world compares to the comfort and security of having someone just to hold your hand.”  

 

The first thing I ever properly talked about face to face to this amazing guy was about my crohn's. Admitedly we were both a bit drunk walking back from a party but we just talked and he listened as I explained what it was I had and how it made me feel and what the future may hold with hospital appointments, new medications and possibly surgery. He put his arm around me and everything just seem to fall in to place.

 

Now we have been together nearly 2 1/2 years and he has stuck by me through absolutely everything. He's been at nearly every hospital appointment with me, sitting holding my hand in the waiting room reassuring me that everything will be okay, he's looked after me when I've been at my worst tending to my every need, he's offered to learn how to inject my medication when I felt like I couldn't do it. He even managed to stay calm when I walked into the waiting room looking for a nurse after my MRI scan wearing a hospital gown partly covered in blood and with my arm dripping blood after having my canular removed! He has just been the most supportive, the most understanding and the most loving person I could ever imagine.

 

Thank you Shannon, I couldn't get through this every day without you x

 

He has also introduced me to something I never thought I would enjoy and love...

FARMING AND TRACTORS!

 

 

Yes my other half is a proper Somerset boy! He work's on a farm and drives tractors! He work's on a farm with a heard of Jersey cows and they produce the yummyiest milk and cream, it's even sold in Harrods! He has introduced me into this world and made me a farm girl and I LOVE IT! I've helped out with this TB testing, calfing, sillage all sorts and it's amazing but bloody hard work!

But, the best thing, the greatest thing! He let me drive his tractor.

No one is ever allowed to drive his tractor.

BUT I DID!

:D

 

 

Till next time my lovelies,

I wish you all happiness and health.

Mwah x